What's in this booklet?
Your cancer treatment can cause side effects. Some of these will occur at the time of treatment and will normally stop when treatment ends. Some of these side effects may last for a long time after treatment; these are longterm effects. Some side effects do not occur for months or even years after treatment ends; these side effects are called late effects. These late effects can be physical or emotional. Not everyone gets late effects, the risk depends on the type of treatment, the dose of treatment and the patient’s age at the time of treatment.
This booklet is designed to provide you with information about the late effects you may experience, what to expect and how they may be managed. If you need specific advice or are concerned about a particular late effect, please contact your medical team or Clinical Nurse Specialist.
This hardcopy version of our booklet can be ordered free of charge to UK addresses.
Although it’s been several years since I finished treatment for aml I often wonder if concerns that I have now are related to that or previous treatments. I found the book informative and answered several questions I have had.
Late effects of treatment
This is a clear and useful booklet. However although there is comment that chronic leukaemia treatments can manifest similar or the same side effects long term, the focus seems largely to focus on patients for whom their leukaemia is not chronic but has been treated with chemo and radiotherapy etc. I find that, even in the medical profession, there is understandably far more focus on treating the leukaemia. Any discussion about side effects of TKI,s only occurs early in treatment, with very little awareness or acknowledgement of late side effects or low these early side effects can increase in severity over time. (For only some people l know). I would therefore have appreciated a little more acknowledgement that for some people, this intolerance to their TKI can also result in late side effects which would benefit from acknowledgement and thoughts on how to manage. Despite my above comment the booklet was excellent as all info from leukaemia care always is.